Usually, this blog is reserved for the fun and flippant, but today I want to share something serious, downright terrifying, but I hope ultimately changeable.
Last week, two dear friends of mine, parents to two young girls, shared that their youngest daughter, Sadie, had been diagnosed with Rett syndrome. This is a neurological disorder that I’d never heard of, and perhaps it’s new to you too.
Sadie’s mom, Stephanie, went on the Today Show to highlight Sadie’s condition and to ask for our help to #ReverseRett.
I hope you’ll join with me and donate to the Rett Syndrome Research Trust (RSRT). If you’re in North America, please click here: http://reverserett.org/today/ and then click the button to donate which will take you to PayPal.
If you’re in the UK, please donate through the JustGiving page I’ve set up:
There is more information about Rett here: http://reverserett.org/about-rett/
With your help, hopefully we can #ReverseRett